The Other Side of MS

The Other Side of MS: A Mother’s Story

The Other Side of MS: A Mother's Story In this episode of "The Other Side of MS," Wendy, a devoted mother with a child who has had MS for over 30 years, shares her personal journey and experiences. Wendy reflects on the initial uncertainty of her daughter Kim's diagnosis, with doctors unsure if it was a stroke or MS, causing tremendous fear and concern. Wendy talks about the challenges they faced, including the psychological impact of others' reactions to Kim's invisible illness.
Wendy emphasizes the importance of self-care for caregivers, highlighting the need to prioritize one's well-being. She also discusses Kim's involvement in the community, particularly as a support group leader and participant in MS conferences and seminars.
The conversation touches on the evolution of Kim's condition over time, the limited drug options available in the early years, and the impact of side effects on her well-being. Wendy shares the challenges of navigating public perception and the importance of raising awareness about the invisible nature of MS. She emphasizes the fatigue and debilitating effects experienced by Kim, highlighting the need for understanding and support from others.
Wendy is a frequent supporter of Casey's Bike MS Fundraising. Help Wendy and Casey by donating. Click the "Donate" button to donate today!

MS, Suicide, and Mental Health: Exploring The Other Side of MS

Suicide, Mental Health and MS: A Panel Discussion
Welcome to "The Other Side of MS," where we explore the untold stories and challenges faced by individuals living with multiple sclerosis (MS). In today's captivating episode, we delve into the profound intersection of suicide, mental health, and MS, shedding light on a topic rarely discussed.
Dr. Sally Spencer-Thomas
A leading expert in suicide prevention and mental health promotion, shares her groundbreaking initiatives and personal journey that led her to dedicate her career to this cause.

Dr. Marin Collazo
A respected neurologist specializing in MS, provides valuable insights into the unique challenges faced by MS patients and their mental well-being.

Heidi Katz
The esteemed President of the National MS Society, North Florida Chapter, offers her deep understanding and unwavering support for those affected by MS.

Podcast Details:
 In this thought-provoking episode, we tackle the delicate issue of suicide and its connection to MS. Our guests share powerful stories, evidence-based strategies, and valuable resources to help individuals facing mental health challenges amidst their MS journey.
Discover the resilience of the human spirit and the transformative power of compassion as we explore personal anecdotes, professional insights, and practical tools for fostering mental well-being.
Whether you are personally affected by MS or seeking a greater understanding of the complexities surrounding the condition, this episode promises to be eye-opening and inspiring.
Don't miss this opportunity to gain insights, find hope, and join us on "The Other Side of MS."
Subscribe now to never miss an episode and help spread the word by sharing this powerful conversation. Listen to all our episodes at https://sites.libsyn.com/464124/site.
For additional support, please check out the links below, including a link to donate to the National MS Society on my behalf for the 2023 Bike MS: PGA Tour – Bike to the Shore. Be sure to also listen to Dr. Sally Spencer-Thomas’ podcast by clicking the links below
Websites and Resources: 
Dr. Sally Spencer-Thomas: https:www.sallyspencerthomas.com
Workplace Suicide Prevention: http://workplacesuicideprevention.com
United Suicide Survivors International: https://unitesurvivors.org
988 National Suicide and Crisis Lifeline: https://988lifeline.org
Suicide Prevention Lifeline in the US: 800-273-8255
Crisis Text Line: Text 74174 to connect with a trained counselor who can provide support and assistance
National MS Society: https://nationalmssociety.org
MS Navigator: https://nationalmssociety.org/NationalMSSociety/media/MSNationalFiles/Brochures/Brochure-MS-Navigator.pdf
Dr. Sally Spencer-Thomas Podcast: 
Hope Illuminated: https://www.sallyspencerthomas.com/hope-illuminated-podcast
Headspace for the Workplace: https://www.sallyspencerthomas.com/headspace
Donate to Casey's Bike MS Fundraiser: 
Support My Fundraiser for MS: https://mssociety.donordrive.com/index.cfm?fuseaction=donorDrive.participant&participantID=261051  

Chris Lennert: COO at Left Hand Brewing Company

From Beer to Bikes: How Left Hand Brewery's COO, Chris Lennert, is Fighting MS Get ready to be inspired by this episode of The Other Side of MS, as we chat with Chris Lennert, the COO of Left Hand Brewery and founder of Team Left Hand. With teams in 8 states and over $6.6M raised for the National MS Society since 2008, Team Left Hand is a force to be reckoned with in the fight against MS.
But there's more to the story than just numbers. What's the significance behind the name Left Hand? How does a brewery become committed to corporate social responsibility and making a positive impact on the MS Society? And what drives Chris personally to dedicate so much time and energy to the cause?
Join us as we dive deep into the history and mission of Left Hand Brewery and Team Left Hand, and hear firsthand from Chris about the challenges and triumphs of expanding the team across multiple states. Plus, find out how you can get involved and support Team Left Hand in their mission to solve the riddle of MS. Don't miss this inspiring conversation.
Donate to Chris' Bike MS Fundraiser
Join Team Left Hand
Sponsor Team Left Hand
 

I am the Storm: Michael Cavicchia’s MS Journey

Michael: A Rookie Triumph at the Bike MS: PGA Tour, Bike to the Shores Event Hey there, folks! Get ready to meet Michael, a true cycling superstar who rocked the Bike MS: PGA Tour, Bike to the Shores event last year. It was Michael's first-ever Bike MS ride, and he didn't just participate—he became the Rookie of the Year, leaving a lasting impact on the event. As a proud member of Team YMCA, Michael pedaled with purpose, showing us all what determination and compassion can achieve. 🚴‍♂️
In this exhilarating podcast, we'll dive into Michael's incredible journey, exploring his love for cycling, unwavering dedication to the cause of multiple sclerosis (MS), and the impressive strides he made as a rookie, no less as a "I ride with MS" cyclest. We'll also uncover his secret to fundraising and discover how you can support his mission. Get ready to be inspired! 🎧💪
Support Michael's Bike MS Fundraiser
So, grab your headphones and join us for an inspiring conversation as we celebrate Michael's rookie triumph and ride towards a brighter future for those affected by MS, one mile at a time! 🚴‍♂️
 
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Marianne Novac Davis with PGA Tour, Bike MS Major Sponsor

Marianne Novac Davis: Steering the Wheel with the PGA Tour and Bike MS Hello, fabulous souls! 🎉 We're about to embark on a journey with Marianne Davis, a pivotal figure behind the PGA TOUR's philanthropic endeavors, particularly as the Title Sponsor of Bike MS: PGA TOUR Cycle the Shore.💖
With over a decade in project management and event coordination for the PGA TOUR, Marianne has been instrumental in shaping and steering major events, and none more so than the Bike MS: PGA TOUR Cycle the Shore. This phenomenal charity bike ride is more than just a sporting event—it's a beacon of hope that rallies support for multiple sclerosis research. 🚴‍♀️
But Marianne isn’t just orchestrating from the wings—she's in the saddle herself as the captain of Team PGA TOUR, pedaling with purpose alongside her teammates. Now, that's what we call leading by example! 🚴‍♀️
So buckle up for a ride like no other as Marianne gives us a sneak peek into the event planning process at the PGA TOUR, reveals the fervor behind their commitment to charitable causes, and ignites a spark in all of us to join the cause of vital initiatives like the National MS Society. Gear up for an enlightening journey! 🎧🎉
Support Marianne Davis's Fundraiser
Join the PGA TOUR Team
Connect with the BikeMS “PGA Tour Cycle to the Shore” Cyclist Group on Facebook
 

Phil Fox: Pushing Boundaries in Ultra Cycling and MS Advocacy

Unveiling the World of Ultra Cycling with Phil Fox: A Journey of Limitless Determination and MS Advocacy Join us for an exhilarating episode as we dive into the world of ultra cycling with our special guest, Phil Fox, a world record holder and an amazing individual in the fight against multiple sclerosis (MS). Phil has taken long-distance cycling to new heights and has raised over $200,000 for the National MS Society. In this episode, Phil shares his inspiring journey and the key moments that pushed him to surpass his own limits.
In his most recent feat, Phil accomplished a mind-boggling world record, cycling a staggering 626 miles around Lake Erie in just 40 hours and 36 minutes without any breaks. He endured the physical and mental challenges, pushing through exhaustion, numbness, and adverse weather conditions, all in the name of supporting his friends and the millions of people affected by MS.
Discover how Phil mentally prepares for these grueling rides and the importance of meticulous planning and logistics. He shares valuable insights into his training routine, building endurance, and staying comfortable during long rides. Phil's dedication and commitment to his cause are evident as he reminds us that anyone can push their limits and achieve remarkable feats with the right mindset and determination.
Join us as we explore Phil's advocacy for MS awareness and research. Phil's journey has been shaped by the profound impact of his friends' MS diagnoses, instilling in him a sense of responsibility to make a positive difference. Learn how his hopeful outlook and the stories he encounters on his fundraising journey continue to motivate him, with the goal of relieving future generations from the burden of MS.
Don't miss this captivating episode filled with inspiring stories, personal growth, and the incredible power of human determination. Tune in now to gain valuable insights from Phil Fox, a true champion in the world of ultra cycling and MS advocacy.
Cycling Achievements
Guinness World Record Holder: Cycling Around Lake Michigan: Covered 921 miles in 64 hours.
Race Across America (RAAM): Completed the 3,000-mile race in 11 days and 5 hours, placing fifth overall.
Named the 2022 'Rookie of the Year.'
MS Connection and Fundraising
Personal Connection: Inspired by his two best friends' MS diagnoses in 2009.
Bike MS: Tour de Farms: Participated in the event, completing his first 200km ride.
Fundraising Efforts: Raised over $200,000 for the National MS Society.
Strong ties to Lakeshore Bike's Demian March and William Edwards, both MS advocates.
Work and Background
Professional Background: Expertise in consulting research and strategy.
Commuting Cyclist: Started cycling as a bike commuter in downtown Chicago 15 years ago.
Social Media and Online Presence
Website: teamphilfox.com
Instagram: instagram.com/teamphilfox
Strava: strava.com/athletes/23781
Facebook: facebook.com/philfox.ultracycling

Christine Boothe: I am unstoppable

Christine: An MS Warrior's Journey In this episode of the podcast, we are joined by a special guest who will take us on the journey of an MS warrior. Our guest was diagnosed with Multiple Sclerosis on February 28th, 2022, after six months of excessive testing. She describes the moment as everything started to spin and feeling numb and confused. However, she had to make a crucial decision within 48 hours of her diagnosis, whether to continue with her IVF treatment or not. She decided to go ahead and transferred the embryo on March 4th, which turned out to be one of her easiest pregnancies and a true life-saver.
Throughout 2022, our guest struggled with depression and anxiety, but on Christmas day, she made a decision to start dealing with her MS and raise awareness about the condition. She realized there was a significant need to spread awareness about Multiple Sclerosis since it is not a "mainstream" disease, and people need to know more about it. She shares how she became a Beachbody coach, using her experience and knowledge to spread positivity, motivation, and fitness/wellness.
Our guest also gives a shoutout to Team Meat Fight for coming to her rescue when she signed up for Bike MS and realized she only had a stationary bike. Through Meat Fight, she was able to meet amazing people and get a brand new bike, which she admits to shedding a tear while riding it for the first time. She is ready and terrified for her very first Bike MS on June 24th and 25th, but her determination to keep moving every day and not let MS win is stronger than ever.
Join us on this inspiring and informative journey of an MS warrior, as we learn more about Multiple Sclerosis, the challenges it poses, and how one can live positively with the condition.
Donate to Christine's Bike MS Fundraiser
Christine's Website

Meat, Bikes, and Multiple Sclerosis: The Inspiring Story of Angela Brandt

Angela: The Meat Fight Phenomenon Join us for an engaging podcast interview with Angela, a passionate member of Meat Fight, a unique fundraising group dedicated to supporting individuals with MS. Discover the story behind Meat Fight's quirky name and their journey from a backyard barbecue fundraiser to a nationwide phenomenon. Angela shares how Meat Fight provides bikes and support for MS patients to participate in endurance events, from bike rides to marathons. Learn about their diverse fundraising initiatives, including a meat raffle and a legendary barbecue competition. Angela's personal connection to MS and her sister's involvement add a special touch to the conversation. Tune in to hear inspiring stories of resilience, family support, and the transformative power of staying active in the face of adversity. Don't miss this opportunity to explore the incredible impact of Meat Fight and the community it has built.
Donate to Angela Brandt
About Meat Fight

Embrace the Challenge: Embarking on a Mission with Ken Strecker

Unleashing Resilience: Ken Strecker's Extraordinary Journey with Multiple Sclerosis Welcome to "The Other Side of MS" podcast! Prepare yourself for an extraordinary tale of resilience as we embark on a mission alongside Ken Strecker in this captivating episode. From a fateful dare to an unwavering commitment, Ken's indomitable spirit in battling multiple sclerosis (MS) will leave you inspired and in awe. Join us as we uncover the challenges, triumphs, and profound impact Ken has made on the MS community. This episode offers invaluable insights and empowers anyone navigating the complexities of living with MS. Don't miss out on this remarkable narrative that will leave you uplifted and motivated to conquer any obstacle.
Donate to Ken's Fundraiser for MS
 
 

Becoming a Voice for the MS Community: The Inspiring Journey of Walter Steele

Walter Steele: A Powerful Voice for the MS Community Get ready to be moved by the incredible story of Walter Steele, a member of the Board of Directors for the North Florida Chapter of the National MS Society and an experienced volunteer who has hosted multiple events for the MS Society. In this electrifying podcast episode, Walter shares his personal connection to MS and how he has become a powerful voice for the MS community.
Join us as Walter discusses the daunting challenges faced by people with MS, including the high cost of medication, and the MS Society's unrelenting efforts to address these issues through advocacy and funding research for a cure. Prepare to be amazed by the incredible strides made by the MS Society's national boards in terms of research and how it's giving hope to people with MS.
But that's not all! Walter also shares his favorite story as an MC for the bike MS event, which perfectly illustrates the positive impact the event has on people with MS. And you won't want to miss his valuable advice on how to get involved and support the MS community in your own way.
Join us for this inspiring conversation with Walter Steele, and discover how you too can make a difference and become a vital part of the MS community. Don't miss out on this uplifting episode - tune in now!
Donate to Walter's Bike MS Fundraiser, Team MJ